MP Andrew Gwynne is counting down the days until he undertakes a charity parachute jump for Dukinfield girl Florence Croce.
Florence, six, has Late-Infantile Gangliosidosis, or GM1, a genetic disorder that progressively destroys the brain and spinal cord, slowly taking away her ability to walk, talk and swallow.
Since her diagnosis, Florence’s family and friends have been tirelessly raising funds so they can ensure Florence gets the best treatment possible and try to get her to America for GM1 clinical trials.
Donations also contribute towards adaptations to Florence’s house so that she can stay with her family as long as possible and make memories with her brother Riccardo and their family.
The MP for Denton and Reddish met with Florence’s mum, Jenny, and Florence too and had planned to make the charity jump back in May.
But the coronavirus pandemic has led to the jump being put back, and it will now take place on Sunday (4 October).
Andrew said: “Jenny told me about GM1, the hideous disease that will slowly take away Florence’s ability to walk, talk and swallow until, eventually, the worst will happen.
“I am terrified of heights but have decided to take part in a parachute jump to raise funds for Florence and would encourage everyone who can to donate to this cause.”
You can read more about Florence and donate at www.justgiving.com/crowdfunding/jenny-croce-fallout.
FUNDRAISING EFFORT: MP Andrew Gwynne with Florence and her mum Jenny.